Ooh blah di, Ooh blah da, Life Goes On ...

Saturday, January 28, 2012.

It has been 18 days since my last post. I have been too ill to write. I don't know how well I am now but I am having a shot at it anyhow.
Deep nausea in the pit of my gut. Rolling screaming green reams of snot that pile and thresh there to be spat out repeatedly. Pink tinged. My tongue is raw. Here comes another hawk from the depths of the deep lime sea.

I am trying to latch onto a slug of Lucozade. A sickly sweet drink I could never imbibe as an ill child but I am prepared to give anything a go today. Never so many typos to clean up.  The little monkey, 10AR, has been told it is it is time to wrap Moshy Monsters on-line gaming addiction for this holiday and try something else instead. She is trying to bribe Daddy with a trip to the poor and forlorn at the RSPCA if she makes him breakfast in bed. He is coughing. Struggling to get up. All is more or less well at 8.28am.

I intend to make it to my 10am meeting, Women's Closed. A most supportive group. 10AR is onto her third cup of continental chicken soup in 8 hours. She can't refrain from talking despite my commands. Commands are useless and her soup makes me feel nauseas.

So the last post was the super successful birthday bash. We got off a few thank you notes and photos after that before collapsing in a heap and not rising from it much since the day of the calamitous news that I would indeed face Round 3 Chemo. This day was double-whammied with the reveal, pus was weeping from the whopping wisdom tooth site at the back of my mouth. My mood was not doing somersaults at the time. Had just heard another friend from church has been diagnosed with breast cancer. It can all get a bit much at times.

Armed with anti-biotics as big as calves I was to somehow swallow in my raw and tender mouth, to rid the pus deposit, constantly nauseas, awaiting a chemo onslaught in 13 days time. I retired to my second bed, the TV couch. Thank God for friend's lending me Bali Movies, The Australian Open, The Ellen DeGeneres show and other light entertainment such as Midsomer Murders.

While I wallowed in my mire of oncoming chemo, pus, constipation, nausea, green slime and pain I took the Morphine up a notch and discovered the upper echelons of wooziness on a new plane. Trippingly close to tinnuitis, the constant ringing in my ears, there wasn't much I could left myself compos mentos for.

A fabulous intense lymphatic massage was a stand-out in this period and I am deeply thankful for the gorgeous girlfriend who bestowed her loving healing hands upon me. I have possibly lost a further four kilos since that event but I am not particularly worried about that state of affairs. Last week when they told me I may never regain my taste-buds ever, sent me to new despondent lows. But it all is relevalant after a while. Just being able to suck on a cold drink without pain would be nice.

I succommbed to a little light retail therapy. Bought a couple of stunning frocks from the best Frock Shop on our Corner," Frock Me", owned by another good friend who always takes special care of me. I bought a Happy Frock to sail me through the last two weeks of radiation. And a glam frock for my dearest BFF who is turning 40 on February 2. Only hope I can sip more than a cold drink and smile appropriately. May the anti-nausea drugs kick in.  Fortunately, Ebay Ladies size 8 shoes were not performing as well as usual.

Forever grateful for this family also for embracing 10AR into their loving care. Taking her to Litchfield Park and the Wildife Park when her own debilitated parents were barely capable of keeping it together on the couch. Soon we will redouble our efforts to be there for you dear family friends.

Love and best wishes to all out there who read this blog. Sorry this has not been a cheery epistle. I have only 3 more radio sessions to go. Things could get a bit worse before better but Sid assures me the light at the end of the tunnel is nigh. Just don't go ordering any meals in tasty restaurants like the Hanuman for a good few months.

Would be lovely to hear from you all again. My spirits need a good rivet right now. Michael and I are set to celebrate 25 years of marriage on March 21. was thinking of going to an Ian Gawler Foundation Retreat in the Yarra Valley at that time but now I feel so depleted. Time will tell. Either that or it will be a simple sunset cruise on a pearl schooner, or some such thing in Darwin.xxxxxxxxx

Would love to hear your news and what you have been doing in this crazy month of January. Love to you all. xxxxxxxxxxxxxxxoooooooooooooooooooooooooooo

Hell in High Heels

Gerbras make the world go round

Wednesday, January 11, 2012: 0620


I am sooooo  ooooover this nausea crap!

I went to bed at 10pm last night with my anti-nausea wafer on board, for a good eight hours' of sleep. Hah! Up at midnight for the next dose of soluble Panadol, my favourite drink of the day. Back to toss and spit and gag till 2am, rising, for the back-up anti-nausea shot. Roll over with ice blocks to soothe my flaming mouth and hope I can garner a bit of repose. Up again at some ridiculous hour, 4am, for something probably not scheduled. Then 6am for more delicious Panadol and a little anti-nausea wafer. Can hardly wait for brekky....

Wish the sod in the back room would wake up and serve it to me. But then HE took it upon himself to dislodge a 30-year-old gold bridge in his mouth on Monday morning, didn't he? Of all bloody days to do that. GOD!!! Still, he was stoic, soldiering through the whole day-long 10-year-old birthday party, while eyeing off my morphine in the fridge. I'm visualizing my morphine in the fridge today. What a fine pair of 50-year-old parents, we are. No wonder 10AR, cries, "Oh my back, back spasm," any time she leans over to pick up something off the floor. Not that she does that too often.

A special BFF helped 10AR here

Wow, what a gringe! Not like me. I haven't felt this poorly for at least a week. Thankfully, I have a 12-step topic meeting at 10.30am today on the Foreshore down the road from home. It will be heavenly by the sea if a little warm. May have a breeze in the sunshine if we're lucky. Expecting a few new members to show up. Take some of 10AR's few remaining gorgeous cupcakes. I need the support of my fellow recovery mates more than ever, each and every day to keep me on the straight, narrow and flat.

Have had some wonderful emails this week. Lovely to have that connection. Saw Dr David, radiotherapist, yesterday. I am doing fine but he has run out of anti-nausea options for me because I take Lithium for my bi-polar disorder. Normally, they offer patients steroids to counter the constant sick feeling, but they may cause a toxic reaction with the Lithium. At least I have completed four weeks, he said. Three to go, so psychologically, that helped me feel a little better, passed the half-way mark. He said he would have a chat to Sid. Hopefully, they will have a solution for me today when I front up at 3pm.

I don't think I can tolerate another chemo. I will if I have to but I don't want to. I have had a gut full of this business and there are still three weeks to go. Chemo is booked for Monday, January 23. Please, please, God, remove it. Cross fingers. Pray for me, you all, please.

Scored this beautiful "discover your own style" manual at the Oncology Unit yesterday also. A Christmas present just meant for me. It is 2008 vintage but still beautiful  and untouched. I dived in for
nearly two hours after my session yesterday. Relaxing into it, I found myself to be mostly Sacred/Dramatic motivated. Not terribly revelational but interesting to see which words the writer uses to describe me so aptly. I look forward to further explorations into this book which may assist me in changing my career and steering me along new pathways in  this second half of my life, post 50, post Cancer, post Drama School, post whatever .... "Know Thyself, To thine own self be true!"

A sea of 10-pin bowlers 

10AR style!

Black Forest Torte!

10AR's birthday was a brilliant affair though it nearly polished off both her parents. Thank God, we had a host of troopers who were able to assist with the 10-pin Bowling. Despatch food and drinks, get bowling shoes to fit, golf clubs for the mini-golf. Score the mini golf. Collect paper wrappings, presents and cards. Dispense party hats, take children to the loo, all the myriad of things parents do all the time they're out with their kids at a party. The disco was a jam. Another helper came in to get the dancing happening. When I finally returned from my radio session with the help of another stalwart BFF, and five helium bobbing balloons; the five girls were casually laid back on the lounge room couch watching Jack Black in "Gulliver's Travels". It was hugely wonderful when it was all over. 10AR had a blast and loved all her presents. I'm sure the guests had a top day out also.

Let The Chemo Begin!

Started Monday, December 12, 2011: ~11.29am

I don't do mornings. Never have. Today was always going to be a rush. And with my Chemotherapy brought forward an hour to start at 8am today, majorly tricky. Well! Up at 7 o'clock charging around. Readying child for school drop off, doffing pills,potions, swishing, swashing, brushing, the time was gone in no time.

Thinness, scragginess, stylish oriental caps, grizzly faces, and an over-riding cheerfulness greeted Michael and I in the Alan Walker Oncology Unit this morning.


 "You must be Gillian."
 Yes.
 "That was a good guess, come this way."
 "My mum's name is Jill with a J.
I haven't cracked a smile yet. It's barely 8am.

 "You seem to have lost quite a few kilos. Is the Pink Lady helping? Milk is really important. Make a milkshake with Milo or ice-cream"  ... hmmm yummm, I'm eaves-dropping on the chat just out of eye-shot on my left.


"Your white platelets .... are too low. Sorry about the (three hour) drive. You'll have to go home again and come back next week." Older couple opposite, look tired and bleak at the news. I feel sorry for them. What will be my plight over the next seven weeks...? 

I seem to be having an easy session. Other than the needle for all the drips, which killed my right hand going in. My fault. Not awake, no breakfast, one cup of tea, one glass of juice, inadequate supply of blood flow. My veins are not junky material.

So many staff away on holidays. It is my prep nurse's first day on the job. I'm already nervous without that. I try using the 12-step program. Be nice. Lachlan, my No. 1 Florence Nightingale, is cruising Sydney Harbour on New Year's Eve. When will he be back to take charge? Abandonment fears surface, let them go. I am in good hands.

I set aside the Sudoko board game to open my black plastic best buddy. Catch up on emails and notes from precious well wishers. I visualise the scent of a lovely English rose candle lit in my health. Deepening our friendship, bringing us together in peace, ease and joy.

I am presently tubed into the chemo toxins happily tapping away. Saline, steroids, and popping anti-nausea tabs all at once. The nurses wear duck-bill masks, translucent blue plastic aprons, rich lavender rubber gloves and stand well back when administering the chemo. Reassuring... They look hilarious.

Michael has chooved off after addressing the nurse's questions on my behalf this morning.


 "Any tightness of  the chest? Tiredness?". 

"No, of course not, I can't keep up with her," he volunteers.

"Well actually my chest is a bit restrained. Has been for several months now... And I get a bit huffy puffy on the third flight of stairs."

I send him off to make a cup of tea, he's good at that. Now he's having his head clipped by the barber. Can't wait for lunch. It is 11.57am. The air-con makes me starving. At least my mouth is ok today. 

Made a "last supper" yesterday. Rack of Loin Pork roast served at 4pm with a mountain of roast vegies courtesy of acting chef Michael. Breakfast, Lunch and Dinner rolled into one as another day went astray. Too long at church, dallying at the market, gathering mangoes, and an over-ripe paw paw for the new life-saving device, the juicer. To be elaborated upon.

Day gone before you know it. Amy made a gingerbread house and decorated it with loads of lollies with a girlfriend yesterday. Delightful Christmas project you may think. Wrong! I arranged a friend to come over and supervise while I packed for the oncology unit but single child threw a wobbly when her friend turned up with younger brother in tow. Three's too many ... "Not fair, they're taking over my house", etc It was all too much. I evacuated across the road. 

What happened to the joy of sharing? Is it just the selfish generation? With five brothers, I was lucky to receive one lolly let alone have a whole gingerbread house to myself. Amy "thought about the gingerbread house all last night," now deposited in the North Pole of our flat - The Freezer. She said she would share a side of the house each with her friend and the little brother could have a door! Lucky boy.

Mum, Dad, a visitor, might like a taste?  It's these matters I found exasperating and stressful!

Still I managed about half an hour lying on a bench in the full throttle of the sea breeze, deep breathing and trying to let all things go. Praying the Serenity Prayer and Meditating.

My fresh juice today was exquisite; dreamy, creamy paw paw and carrot juice.

The juicer is a miracle machine.  Can't recommend it highly enough. First talked about on Friday a week ago. Bought this Friday. Just happened to be sitting there for us at Crazy Clark's, $50, and still performing excellently four days later.  A year warranty and it has already changed my life. A sack of carrots, a whack of celery, pears, apples, two fruit, paw paw, watermelon, whatever we can find to stick through it basically. Delicious! Instant health and feeling of well-being. Still finding ways to improve the outcome. Paw paw bit extravagant - insufficient juice extracted. Must buy GINGER, in all its many forms, fresh, tea, chocolate, etc... and beetroot.

So that is more than enough for me today. Unable to sleep at nearly 1am on Tuesday, December 13, 2011. Rather stuffed myself tonight on roast vegies, Brie, custard creams (very ordinary and totally irresistible at the same time). Took a whole 0.5 Clonazepam at 11pm. My Circadians are pretty stuffed. The Full Moon last Thursday was belligerent. I am tired now and want to finish.


Suffice to say, Lachlan says I skied through the first of four sessions of chemo. The staff are very positive for me. Though he did mention he saw me on the slopes of Perisher. I thought that was an unfortunate choice of ski resort. Michael who had returned for this conversation with "Multi-grain Pringles in sour cream and a noggin shaved to the quickening, reckoned I was going to be Fukishimoed in the radiation section shortly. We were bandying around snowfields I think.


Frankly, all went well, though the radiotherapy mask is hellish and gives me a good 15 minutes of strangulation. Amy was 9-year-oldly underwhelmed by it when I produced the torture tool for her. She was intrigued by the pock marks it leaves however.

Thank you ALL for all the wonderful supportive texts and well-wishes today. They mean an enormous deal to me. Please keep them coming, to Michael's phone, or this blog, or email.   xxxxxxxxxooooooo

Sianara, over and out. Loads of love, Gill

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